25 October 2018, Nijmegen, Netherlands
The CoCa Project represented by Barbara Franke and the Dutch ADHD association Impuls & Woortblind held an “Expert meeting” about the European study on ADHD and comorbidity at the Nijmegen University. The ten scientists had a brainstorm session with ten ADHD participants to a new study of brain functions with reasearching ADHD and certain comorbid disorders. Subjects like like biomakers for diagnoses, better medications and the evolutionary theory on ADHD were discussed. One of the actions that came out as a result of this meeting is the preparation of research into a toolkit with evidence based or at least practice based tools for coaching people with ADHD.
This project shall start at the Radboud UMC in Nijmegen. This involves depression, substance abuse, addiction problems or overweight, obesity in addition to the ADHD. People who have ‘comorbid problems’ in addition to ADHD are normally excluded from research into ADHD and while this often occurs in practice. As a result, very little is known about these groups. That is what the research group wants, under the guidance of the well-known ADHD specialist Prof. Dr. Jan Buitelaar would like to change.
23-26 October 2018, held in Edinburg, Scotland: We have highlighted events during the International Conference, and you may view the contents by clicking on each day (1-4).
Day 1: Keynote presentation: The course and outcome of childhood ADHD: what have we learnt from the MTA study? by Professor Jim Swanson, Symposium: Is ADHD in adults a disorder of executive failure? What have we learnt from the investigation of persisters and remitters in young adulthood? Neurocognitive investigation of persisters versus remitters by Professor David Coghill.
Day 2: Symposium: Late-onset ADHD by Dr Jessica Agnew-Blais; Plenary session: ADHD Europe –Patients as partners: a voice for change: “It’s all about attitude and education”; Parallel session National and International guidelines for the management of ADHD by Professor Tobias Banaschewski; Parallel session: Brain mechanisms of the treatment response by Professor Jeffrey Newcorn; Industry-sponsored symposium: Bridging the gap: from adolescence to adulthood in ADHD clinical practice by Dr David Bull;
Symposium: Brain training and neurofeedback by Professor Daniel Brandeis; Clinical workshop: School-age children by Dr Paramala Santosh; Clinical workshop: Adult ADHD by Professor Phillip Asherson; Plenary session: The Art of ADHD – Unreasonable adjustments by Dr Kai Syng Tan.
Day 3: Symposium: Long-term treatment outcomes – what have we learnt from pharmaco-epidemiological studies? by Professor Henrik Larsson; Industry-sponsored symposium: Making it happen: ADHD guidelines in clinical practice by Professor David Heal; Roundtable discussion: Perceptions of ADHD – best friend or worst enemy with The panel (L–R): Professor Hans-Christoph Steinhausen, Dr Kai Syng Tan, Ms Andrea Bilbow, Professor Margaret Weiss, Professor Edmund Sonuga-Barke;
ADHD Europe response: “We need to provide an educational system for ADHD, as society would benefit so much from these people in the future.”;
Symposium: Transition of ADHD patients from childhood into adulthood by Professor Andreas Reif; Professor Barbara Franke response: “… [ADHD] is very heritable but there is no ‘ADHD gene’
… there are multiple genetic variants … and different patients [with ADHD] have different combinations of different genes.”; Parallel session: Implementing cognitive behavioural therapy for adult ADHD by Dr Mary Solanto; Parallel session: ADHD mindfulness-based interventions and the wandering mind by Dr Corina Greven – Professor Asherson response: “Can we target mind wandering with mindfulness?”; Parallel session: ADHD and aggression by Professor Phillip Asherson and his comment “A prisoner once said that “Following treatment, now when I’m provoked into aggression I am able to stop, think, and make another choice”; Parallel session: The placebo response by Dr Iris Manor; Symposium: Medical and nutritional interventions by Dr Julia Rucklidge.
Day 4: Symposium: Genetics and endophenotypes by Professor Edmund Sonuga-Barke; Symposium World Federation of ADHD: Is there a positive side in ADHD? by Dr Corina Greven: Symposium Early intervention and prevention by Professor Guilherme Polanczyk; Keynote presentation: Health-related quality of life and functioning/impairment in ADHD by Professor Sven Bölte; Symposium: ADHD and overlap with neurodevelopmental disorders by Professor Jan Buitelaar; Conference close: The future by Professor David Coghill.
23rd September 2018 Delivering cost-effective services to adults with ADHD
ADHD in adults: latest findings and update on progress by Professor Philip Asherson, Chairman of the Programme Committee, gathered together a global faculty of leading experts, in ADHD & associated conditions, who presented an exciting and challenging programme of plenary sessions and satellite symposia. Focused on key issues relevant to delivering every day ‘evidence based’ clinical practice.
A quote from Prof Phil Asherson: “Mind wandering is such an ADHD symptom.”
5 September 2018, Rome, Italy New scientific evidence about ADHD
ADHD Europe participated in an event hosted by A.I.F.A. Onlus – Associazione Italiana Famiglie ADHD and the great group of researchers from CoCa and the Agressotype project.
2– 3 September 2018, Rome, Italy Steering Committee meeting
ADHD Europe participated with the Steering Committee (SC) of CoCa Research Consortium & Aggressotype consisting of all WP leaders and a representative at concentris who meets twice a year. It is the supervisory body where all technical details of the work are discussed. It is responsible for the successful implementation of the project regarding its schedule, budget and expected scientific quality. The SC is furthermore in charge of the preparation and execution of the decisions of the General Assembly.
The steering committee comprises of:
Catharina Hartman, Professor, Department of Psychiatry, University Medical Center Groningen, Netherlands;
Bru Cormand, Professor, Academic Secretary of the Dept. of Genetics, University of Barcelona, Spain; Johannes Thome, Professor, Chair of Dept. of the Clinic and Policlinic of Psychiatry and Psychotherapy, University Medicine Rostock, Germany; Andreas Reif, Professor, Chair of Dept. of Psychiatry, Psychosomatic Medicine and Psychotherapy, University Hospital Frankfurt, Germany; Ulrich Ebner-Priemer, Professor, Chair of Applied Psychology, Karlsruhe Institute of Technology, Germany; Christine Freitag, Professor, Chair of Dept. of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital Frankfurt, Germany;Jan Haavik, Professor, Head of Research Centre, Department of Biomedicine, University of Bergen, Norway; Stephen Faraone, Professor, Distinguished Professor, Director of the Dept. of Psychiatry and Behavioral Sciences, SUNY Upstate Medical University, US; Barbara Franke, Professor, Head of the Research lab for Multifactorial Diseases at the department of Human Genetics, Radboud University Medical Centre, Netherlands;Jonna Kuntsi, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, UK; concentris representative: Cora Meyer, Dr., concentris research management, Germany
January 2019, Recruitment for studies in 3 European Countries Frankfurt, Germany; Budapest, Hungary and Barcelona, Spain Eat2beNice Probia Project “PROBiotics for Impulsivity in Adults”. This study will be performed in three centers of Europe. We will communicate more news about this shortly.
19– 21 March 2019, Barcelona, Spain CoCa Consortium: 4th General Assembly Meeting ADHD Europe will attend on behalf of our membership.
7th March, 2019, Training Course UKAAN: Diagnosis and Assessment, One Day Course 2019 This workshop will provide training in the diagnosis of ADHD. Following the course, participants should be able to screen for and diagnose ADHD and distinguish ADHD from other common mental health disorders.
8th March, 2019, One Day Training Course UKAAN: Pharmacological Treatment of Adults with ADHD The workshop will provide training in pharmacological treatments for ADHD. Following the course participants should be able to initiate and optimise treatments for ADHD.
25 -29 April 2019, Lisbon, Portugal 7th World Congress on ADHD from Child to Adult Disorder ADHD Europe will attend on behalf of our membership.
May 16-18, 2019, Chicago, Illinois CoCA symposium at the Society of Biological Psychiatry’s 74rd Annual Scientific Convention ADHD Europe will attend on behalf of our membership.
4th July 2019, One Day Training Course UKAAN: Diagnosis and Assessment This workshop will provide training in the diagnosis of ADHD. Following the course, participants should be able to screen for and diagnose ADHD and distinguish ADHD from other common mental health disorders.
5th July 2019, One Day Training Course UKAAN: Pharmacological Treatment of Adults with ADHD The workshop will provide training in pharmacological treatments for ADHD. Following the course participants should be able to initiate and optimise treatments for ADHD.
7-10 September 2019, 32nd ECNP Congress, Copenhagen 2019 ECNP is an independent scientific association dedicated to the science and treatment … and pre-clinical research, diagnosis and treatment of disorders of the brain to …/
3rd October 2019, One Day Training Course UKAAN: Diagnosis and Assessment This workshop will provide training in the diagnosis of ADHD. Following the course, participants should be able to screen for and diagnose ADHD and distinguish ADHD from other common mental health disorders.
4th October 2019, One Day Training Course UKAAN: Pharmacological Treatment of Adults with ADHD The workshop will provide training in pharmacological treatments for ADHD. Following the course participants should be able to initiate and optimise treatments for ADHD.
7th November 2019, One Day Training Course UKAAN: Diagnosis and Assessment This workshop will provide training in the diagnosis of ADHD. Following the course, participants should be able to screen for and diagnose ADHD and distinguish ADHD from other common mental health disorders.
8th November 2019, One Day Training Course UKAAN: Pharmacological Treatment of Adults with ADHD The workshop will provide training in pharmacological treatments for ADHD. Following the course participants should be able to initiate and optimise treatments for ADHD.
Details to be announced
6th Eunethydis International Conference on ADHD
5 September 2018, Rome, Italy New scientific evidence about ADHD
The great group of researchers from CoCa and the Agressotype project.
01 June 2018, Barcelona, Spain: The MiND project held at Vall d’Hebron Hospital
23-27 July 2018, Prague, Czech Republic
Andrea Bilbow and Marko Ferek attended the 23rd World Congress of the International Associations for Child and Adolescent Psychiatry and Allied Professions. It was the first time that the Congress took place in the regions of Central and Eastern Europe. Most of the day was spent speaking to visitors to the congress at the ADHD Europe table with our leaflets, and banners.
The aim of the Congress was a one-of-a-kind opportunity to share views of cutting-edge findings and trends, but also to emphasise the importance of comprehensive care of the mental health of children and adolescents as a main priority of modern society in the 21st century.
Andrea Bilbow and Marko Ferek spreading awareness about ADHD Europe during the event and of course an event is not complete without a talk from our President on the need for psychoeducation for parents of children with ADHD. We reunited with Dr. Prof. Dr. Bengi Semerci, Vice President of IACAPAP who presented the cultural aspects of ADHD with Maite Ferrin Erdozain and saw Dr. Robert Doyle (MD, Clinical psychiatrist) visited our stand all the way from Harvard University, Massachusetts.
The November 2018 issue of the Bulletin is now available at the website <http://iacapap.org/bulletins>. It contains reports about the Prague congress. Here is a handy guide about externalizing disorders from IACAPAP Textbook of Child and Adolescent Mental Health
01 June 2018, Barcelona, Spain New advances in understanding ADHD improving intervention
ADHD-Europe, and ADANA Foundation participated in a successful patient information evening, with over 300 participants. Andrea Bilbow OBE, gave a welcoming speech, in partnership with The MiND project and Vall d’Hebron Hospital, Dr Toni Ramos-Quiroga. The Poster presentations were given by the MiND early stage researchers: Viola Palladino, Niall Mortimer, Anu Shivalikanjli, Joanna Szopinska-Tokov, Sara Boxhoorn and Francesca Waddington. Topics from each work package were represented, with posters ranging from genetics to cognition and behaviour in ASD and ADHD.
30-31 May 2018, Barcelona, Spain Parent-Patient Conference
Meeting of great minds at the MIND Project with Andrea Bilbow, Marko Ferek, Phillip Asherson, Barbara Franke, Andreas Reif, Tony Ramos, Francesca Waddington and many others for the 4th year of our project on ADHD and Autism.
2-4 May 2018, Örebro, Sweden Focus: Around new collaborative projects/grants
Site members national grants and bigger cross-lab proposals and mentoring (e.g., how IMPACT can help more junior members – career planning, grant writing, lab visits, invited talks etc.).
20 April 2018, Ireland, Dublin ADHD AND comorbidities Exciting findings
Mind the Gap shared information and wrote about Collaborations with patient organisations at the 3rd CoCa meeting. ‘Two representatives of ADHD patient organisations also joined our meeting: Andrea Bilbow from ADHD Europe, who is a partner in the CoCA project, and Ken Kilbride from ADHD Ireland. It was good to have these experts with us, and discuss with them how we can best translate our research findings to the people who should benefit from these findings. In Ireland for instance, there is very little knowledge about adult ADHD amongst health care professionals. It is therefore essential that our knowledge is also transferred to them, so that they can provide better care. With the help of Andrea and Ken, we came up with a lot of new ideas for ADHD Awareness Month. During the entire month of October we aim to generate more awareness about. We will specifically target schools, such as universities and German Berufschule to inform both pupils and teachers about how to recognise ADHD and comorbidities, in adolescence and adulthood.’
Read the full article here posted by Jeanette Mostert from Mind the Gap – Blog, on 20 April 2018.
18– 20 March 2018, Dublin, Ireland ADHD Europe participated in the The fifth Steering Committe-meeting and participated in the General Assembly meeting
14 – 16 November 2017, Spain, Fuerteventura
Aggressotype held their 5th General Assembly Meeting and a Masterclass was held prior to this meeting. ADHD Europe was involved in the meeting and actively took part in discussions and decisions. The meeting was well appreciated by all partners and a milestone towards the last year within Aggressotype was taken.
19 -21 March 2017, Barcelona, Spain
ADHD Europe participated in the 2nd CoCA General Assembly meeting discussing the first 15 months of CoCA which have successfully passed. The CoCA app which has been developed, most ethics approvals are in place to start the studies in WPs 3, 4 and 6 and first papers have been published or are in preparation. Addtionally, next steps that need to be taken were addressed and the Internal Ethics Board and Dissemination Commitee came together to catch up on important issues. As part of the Dissemination Commitee Jos Brunner from Philips joined the meeting and gave a talk on ‘Innovating in a leading company in Health and well-being – An introduction into Philips Research’. We were also happy to welcome Denise Bijlenga from PsyQ, Expertise Center Adult ADHD (The Hague, The Netherlands) as a guest speaker on ‘Sleep disturbances in adult ADHD’. Additionally, CoCA’s MasterClass met for the first time. Here Denise Bijlenga gave a workshop for Early Career Researchers on ‘Specialized treatment and objective measures of ADHD in adults’ and Jeanette Mostert from RUMC conducted a workshop on ‘How to write a blog’.
1-3 November 2016, Netherlands, Utrecht
Agressotype held their 4th General Assembly Meeting and an Early Career Scientist Workshop was held prior to this meeting. After this the meeting was followed by a successful 2-day meeting. Again this year, our patient organisation ADHD Europe joined the meeting and gave productive advice. The meeting was well appreciated by all partners and a milestone towards the next steps within Aggressotype.
11-13 November 2015, Lisbon, Portugal
ADHD Europe attended the 3rd General Assembly Meeting with Aggressotype . This annual meeting started with a Masterclass session for all Early Carreer Scientists within Aggressotype. During this session Dr. James Blair (National Institute of Mental Health) and Rui Oliveira (Universidade de Lisboa, Instituto Gulbenkian de Ciência) gave talks and thus provided insight into their research field and were open to questions. After this the meeting was followed by a successful 2-day meeting. Also this year the SEAB members gave productive advises and thus the meeting was successful and a milestone towards the next steps within Aggressotype.
29 September – 1 October 2014, Germany, Mainz
Aggressotype held their 2nd General Assembly meeting and was attended by representatives of all partners, Scientific and Ethical Advisory Board members, as well as a member of the board of ADHD-Europe. The meeting was accompanied by fruitful discussions, constructive remarks and vivid interactions in additional training workshops. The SEAB members gave constructive and relevant advises and thus the meeting was a great success and an important step in fruitful further scientific collaborations.
4-6 November 2018, Madrid, Spain
The General Assembly meets once a year to present and discuss the work that has been done, and to determine the approach for the next year. The first meeting was held in Madrid on November 4-6, 2013, and was attended by representatives of all partners, Scientific and Ethical Advisory Board members, as well as a member of the board of ADHD-Europe. With very constructive discussions any many thoughtful and also practical comments from the SEAB members, the meeting was a great success and was key for a smooth project start.