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Andrea Bilbow OBE
Current Role: President
Andrea Bilbow OBE is the founder and Chief Executive National Attention Deficit Disorder Information and Support Service ADDISS the national ADHD patient advocacy group in the UK and Over the past 20 years she has been supporting families affected by ADHD, developed programmes for training teachers and now trains practitioners to deliver behaviour management programmes to parents. Through ADDISS she holds the UK licence for the 1 2 3 Magic programme. She trains and lectures internationally and is also involved in several international research studies.
Andrea is involved in a number of ADHD research projects including an NIHR programme development grant to develop an online parent based intervention for ADHD, is a member of the NIHR Healthcare Cooperative MindTech which is seeking to improve the use of technology in mental health and was a member of NIHR Mental Health Research Network (MHRN) Clinical Research Group for Assessment and Treatment of ADHD which concluded that identification and assessment of children and young people with ADHD was a key research priority, and in turn informed the development of this proposal.
She was also involved in the development of a web based application to monitor behaviour in children for parents and teachers The WHAAM funded by the EU Long Life Learning programme.
Andrea is co author on the following papers
Cessation of attention deficit hyperactivity disorder drugs in the young (CADDY)–a pharmacoepidemiological and qualitative study.
Wong IC1, Asherson P, Bilbow A, Clifford S, Coghill D, DeSoysa R, Hollis C, McCarthy S, Murray M, Planner C, Potts L, Sayal K, Taylor E. Health Technol Assess. 2009 Oct;13(50):iii-iv, ix-xi, 1-120. doi: 10.3310/hta13490.
A Randomized Controlled Trial Evaluating the Efficacy of a Psychoeducation Program for Families of Children and Adolescents With ADHD in the United Kingdom: Results After a 6-Month Follow-Up.
Andrea has raised two sons with ADHD one of whom also has Asperger’s syndrome and also has a diagnosis of ADHD herself. Her sons are now adults who are doing very well but the challenges of gaining access to care within the NHS, as well as support and advice to support her son’s education led Andrea to found ADDISS to help other parents. In June 2013 she was awarded the OBE (officer of the Order of the British Empire) by Her Majesty the Queen for her work supporting families with ADHD.